I’m in another ‘downtime’ phase
after the excitement of my histology results. They were almost as good as
they could have been, with no cancer in the lymph node, the tumour completely
removed, and evidence that the chemotherapy had killed more than 90% of the
cancer cells. I was genuinely surprised, because I had to have a
therapeutic mammoplasty rather than a lumpectomy, as the footprint of the
tumour appeared largely unchanged from MRI data. I was bracing myself for
more surgery, disappointing chemo results and spreading cancer, but none of
this has happened. It seems that the only reliable evidence is when you
get to see the tumour for real and the histopathologist can do his (it was a
‘his’ in this case, not my casual sexism) analysis. It felt like the
horizon was opening up in front of me, such was the relief that enveloped
me. Nevertheless, my mood has changed as I deal with the practicalities
of life now and what comes next.
Thursday, 3 January 2019
Saturday, 24 November 2018
Act 2: Beginners Please
My
attitude approaching surgery has been different from preparing for my
chemotherapy, partly because surgery seems more comprehensible than the potions
of the physician. The surgeon is going to cut the cancer out. We
can all get our heads round that; no need for bewilderment at the
technicalities of the chemicals that make up those black covered bags, the contents of which have been pumped into me. Of course, the surgery is
anything but simple, but the concepts are easy to grasp, and therefore the
reactions post-surgery should be easier to deal with. Maybe.
Tuesday, 30 October 2018
Rollercoasters
Even in the midst of
treatment for cancer I have found something to admonish myself for. Part of my
soul is relieved as, since I found that lump at the end of June, I seem to be
reinventing myself as a wise and content woman of strength, dealing maturely
with the challenges that have been thrown up. I can now assure you that inside
all that dressing there still lurks a very frightened child screaming ‘why me?’
and ‘it’s all my fault; I deserve this’. Yes, very confusing I agree. So what
disappointment has simultaneously soothed and reprimanded? The fact that I
promised myself (and by extension my band of readers) a blog at each stage of
this process and yet weeks and events have passed with my fingers not reaching
for the keyboard. I have thought about writing a number of times and even,
unusually for me, thought of a title for the blog before setting finger to
keyboard; but it is only now, when I know I’ve ‘let myself down’ that I can get
to the job of writing. Why? What is happening now?
Monday, 17 September 2018
Seconds Out
Of the many tangled issues to deal with when living with
cancer (oh, doesn’t that sound like the start of an advert ridden click bait
you’ve just idly opened), the biggest issue is one of time. You either have too much or too little of
it. For me, before treatment started
there was the creeping anxiety that my grade 3 tumour was going to spread too
fast to catch it, and now, I want it all done and over with. I’ve had one cycle of chemotherapy, I’ve been
brave walking forwards into the unknown, now is the time to be told ‘it’s fine,
you’re ok’. It isn’t like that.
Wednesday, 5 September 2018
Patience
Last Monday I thought about writing this next blog and was
worried it might be a bit tedious for the reader used to the high drama of
diagnosis and first treatment. I had got
through the worst of the pain of the first chemo and only had my wig
appointment to look forward to last week.
Much as I am apprehensive about losing my hair, I’m not agonising about
it, not yet. It’s not something I relish, but equally it isn’t something can
really do anything about except be practical. I have written about 'being practical' before, I thought about these things before, this is not new territory for me, and there I was, pondering what might
appear in the next blog. There is a
lesson in that, one of those that could be converted into a syrupy meme with a
hazy picture of a sunset as background.
Never worry about tomorrow, enjoy today.
If only I had known.
Tuesday, 28 August 2018
How Was It For You?
Chemotherapy is a highly individual medicine. It is made for the patient in the hospital
pharmacy, once all the patient’s details have been given. True, the processes within the body are broadly
similar, but the body’s response to those chemicals can vary widely. This makes the next part of my ‘journey’
quite difficult (oh, how I hate that term, but find myself using it and
berating myself simultaneously). While
there are commonalities between people having chemotherapy, nobody can tell you
how it will affect you. Those of us who
read the ‘side effects’ lists on drugs will know that there is a tendency for
drug companies to cover themselves and put all manner of ‘side effects’ as
potentials. These days the companies helpfully
categorise side effects so you have an idea of what is common and what is not,
but facing something so fear-inducing as chemotherapy, my usual way of dealing
with things by trying to understand what is coming is rendered useless, partly
through my own fear. Cutting off my
hair, which I don’t like even if it does make me look so much younger, was something I could choose to do to mitigate the effects of what was coming. However, I have always been aware that to
some extent I must surrender. This I
have found tricky, because to surrender I have to trust, and life has taught me
that is a bad idea.
Sunday, 19 August 2018
The Enemy Within
The euphoria following the test results left me a bit
stunned. So many people were genuinely relieved
that my cancer is localised, and my daughters were, frankly, shocked. Not disappointed shocked, but the worry had
so invaded their souls and bones, that they, and I, were numb with relief. Of course, whilst the good news was amazing,
the process of dealing with my cancer had to continue, and the next thing was a
visit to the oncologist. I hung round
when the post was due, and if I’d been out, my eyes scanned the post on the mat
with a practised eye, looking for a tell tale white envelope with a local franking
mark. Sometimes they are marked ‘confidential’,
at other times they are quite innocuous.
Kit had told me I would hear in the next two weeks, but, as ever, the
appointment arrived a few days after the results of my tests, with an appointment
for the following Thursday to see the oncologist.
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